Interoperability is a wicked problem!
IPS is a good focal point. It should put clinical clinical needs first and it's in the "goldilocks zone": not to small to be interesting, and not too big; we can tackle it.
We want to co-produce! We are here together to solve these problems jointly.
We can just do things! We don't want perfection to get in the way of good progress.
ACTION: Please add JSON samples of your IPS bundles to this repo, and update them if you tweak your output, so we all have access to an up to date set of test files.
Hack heavy goals
Build on the NHS-E IPS GitHub spec.
Co-produce a draft UK Patient Summary Implementation Guide (UK-PS) based initially on EN requirements aligned to the global IPS IG 2.0
Explore how we can safely and realistically support IPS-based sharing.
Emerging themes
We clustered the questions and concerns with the current IPS implementations into some common themes.
Action: These are currently very terse memory aides! To the folks who raised them, please open issues on this repo about each topic to add more detail and capture some key points and suggested solutions.
Action: This is @olizilla's best effort at capturing them. If any have been missed please add them!
IPS Display
- Narrative vs Structured data
- How restrictive should we be on ingest when pulling from multiple sources? (Diagnostic)
- How do SheRs handle unstructured HTML from Primary Care
- Standard IPS stylesheet or presentation layer.
- mime-types for supported formats
- NRL pointers
Terminology
- How to deal with locale specific SNOMED codes? Degrade to text or degrade to parent code?
- Parent code often too generic to be useful!
- SNOMED Terminology Systems
- Inconsistent use of coding systems
- Validation of codes and what to do about invalid ones?
- How to handle local codes?
- Code systems need URIs
- The adoption stream was focused on a singular "Patient Summary". The tech stream is talking about multiple plural summaries. Are we on the same page?
Provenance
- When, where, who, more??
- Dealing with multiple IPSs and sources
- Who has the right answer? How to deal with conflicts?Which system has authoritative answer?
- Patient view of Summary as potential lever for improving record quality.
- Download my IPS to my device?
- Curated ahead vs generated on demand.
- How to report errors where we know source may have data for summary but are temporarily unavailable?
Scope: Labs & Obs
- Labs: scope "currency rules"
- Physical Obs
- Some lab results may be important
- Measurements in IPS too big and often not relavent.
- IPS record size and criteria for relevance
- What do National systems do already that we should not duplicate.
Medicines & Allergies
- Medication repeat active state
- Current medication
- Medication Statement vs Request as source?
- Medication: complex dosage.
- Allergy coding
- Allergy severity vs criticality
- Condition. Problem - 451 only
Others
- CPR Decision without context
- Need moar gatherings like this! When is next one?
Interoperability is a wicked problem!
IPS is a good focal point. It should put clinical clinical needs first and it's in the "goldilocks zone": not to small to be interesting, and not too big; we can tackle it.
We want to co-produce! We are here together to solve these problems jointly.
We can just do things! We don't want perfection to get in the way of good progress.
ACTION: Please add JSON samples of your IPS bundles to this repo, and update them if you tweak your output, so we all have access to an up to date set of test files.
Hack heavy goals
Build on the NHS-E IPS GitHub spec.
Co-produce a draft UK Patient Summary Implementation Guide (UK-PS) based initially on EN requirements aligned to the global IPS IG 2.0
Explore how we can safely and realistically support IPS-based sharing.
Emerging themes
We clustered the questions and concerns with the current IPS implementations into some common themes.
Action: These are currently very terse memory aides! To the folks who raised them, please open issues on this repo about each topic to add more detail and capture some key points and suggested solutions.
Action: This is @olizilla's best effort at capturing them. If any have been missed please add them!
IPS Display
Terminology
Provenance
Scope: Labs & Obs
Medicines & Allergies
Others